I had my follow up MRI on Monday morning and today I go to see the neurologist and get the results. At this moment in time I really don't think I have MS, one of the biggest symptoms of MS is heat sensitivity and I don't have that.
Talking of heat, it's been HOT here recently. We had family photos taken last weekend and we managed to choose the hottest day EVER at our location. Now we get a lot of hot days but these last few days have just been unbearable because of the humidity. I hate humidity, you walk out the door and are dripping with sweat within 5 minutes, not the greatest conditions for family photos so we'll see how they come out.
At the end of the photo session we were walking back to the car and the photographer said "we have one of those in our group of friends as well" (talking about Callum) and then continued to say how alert he was and how he must be high functioning. I was a bit floored by the comment and didn't know what to say, I don't think she meant it in a bad way and English isn't her mother tongue but I still think I should have educated her. What should I have said?
UPDATE: Well the answer is... still unknown!!! I still have some little spots (leisons) on the MRI but they're tiny and not in the usual places for MS. I maybe have 1 more than I did last time but they're so small that it's hard to tell. For a leison to count towards the MS diagnostic criteria then it needs to be at least 6mm, the largest of mine was 4mm. I have to go back for another MRI in a year and go back sooner if I notice any symptoms. For now everything looks good and I don't have any symptoms so there's no point in stressing over future "what ifs".
Wednesday, July 26, 2006
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7 comments:
Good luck at the follow up appt today!
I probably wouldn't have known what to say either. But a comment like that one would bug me "one of THOSE" like they are talking about another species or something!
Good news on the MS! You're right in not worrying. I'm sure all will be well.
People say the weirdest things sometimes! I probably would have laughed & said "he's not a those, he's a child" and then gone on to say yes, he's high functioning, etc. etc. People often don't know what to say but want to say SOMETHING. It really can be tough knowing when to educate & when to just smile politely.
That's great news...as for their comments, I don't know...I am always so dumbstruck when people say things in a way that is hurtful to me and my family, but they don't know the difference. Sometimes I wish I could rewind (like TIVO) and say exactly what I should have said.
I'm glad you went to the Aquarium, and I think the Getty was a great place for the kids to run around, and look at some art. If you're serious museum goers, you won't get to see as much as you would like with the kids, but I thought it was worth it.
Maybe we can get together for a playdate one of these days?
Suzanne
I never know what to say in those situations either. Usually I am simply too shocked to stammer out a reply, but come up with several snappy comebacks in the car afterward.
I don't know if it's possible to really educate people anyway, as they seem to come pre-wired with their own perceptions.
Good news on the MS! Keep us posted...
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Best regards from NY! » »
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