Friday, September 30, 2005

Some better news

I talked to the doctor this morning about Callum's celiac blood screening result. It is borderline and as he's completely asymptomatic they will not do a biopsy as it's an invasive procedure. Basically the celiac is currently latent, he may start having symptoms tomorrow or he may never get symptoms we just don't know. So for the moment we're in a wait and see mode - we'll start trying to lower the amount of gluten that he does eat but we don't need to do the strict gluten free diet yet. As soon as we see any symptoms that could be attributed to celiacs then we get a referral to a gastroenterologist and do the biopsy, they'll also keep doing the blood screening to see if the level of antibodies he has goes up.

I'm breathing a big sigh of relief, I just couldn't imagine telling Callum that he wasn't allowed to eat Cheerios or goldfish crackers and trying to keep him from "sharing" the other kids food at day care would have been a nightmare. Hopefully he will stay symptom free until he's old enough to understand the restrictions that would be placed on him.

5 comments:

Kim Ayres said...

Best of luck.

Belovedlife said...

Naomi,
I know exactly what you're going through. We had Peanut tested for Celiac a couple of weeks ago. When it came beack negative I was so releived. You see I am allergic to eggs. All parts so I can'thave anything with egg of Lecithin or made on an egg machinery. It is VEry difficult. You can't eat out, well you can, but you wonder if you'll have a reaction and end up in the ER.
The good news is over the last few years I have found ways around the egg. I found Egg substitute from Tapioca powder that allows me to make cookies, and cakes and breads and all kinds of things that I wouldn't be able to eat. (It is a good diet!)
Anyway I digress, The celiacs is tough, but you'll get through it, and like you said it may remain latent and you'll have no problems.
Peanut went for her enema and it came back negative. Which is great, however we are back to square one, figuring out why she is so darn constipated!
Good luck, I'll let you know if I come across any good cookbooks for gluten free, just in case... :)
R

BStrong said...

That's fabulous news. I like those goldfish too. I guess that you need to circle and put a question mark next to Celiac on the list instead of checking it off.
We should all compare our lists sometime:)
B

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